Other neurological conditions

PAEDIATRIC

  • If any of the following are present or suspected, please refer the patient to the emergency department (via ambulance if necessary) or follow local emergency care protocols or seek emergent medical advice if in a remote region.

    Paediatric

    Other neurological conditions

    • Developmental/ intellectual impairment or behavioural / psychiatric disorders with regression
    • Acute encephalopathy, acute confusional state, altered level of consciousness
    • In the majority of cases it is thought inappropriate for children to wait more than 6 months for an outpatient initial appointment
    • Referral from a health practitioner other than a General Paediatrician may be accepted if there is limited access to public Paediatric services in the patients' local area
    • A change in patient circumstance (such as condition deteriorating) may affect the urgency categorisation and should be communicated as soon as possible.

    Clinical resources

    • If you have a reason to suspect a child in Queensland is experiencing harm, or is at risk of experiencing harm, you need to contact Child Safety Services
Minimum Referral Criteria
Category 1
(appointment within 30 calendar days)
  • Neuroinflammatory disorders – follow up after past acute presentation with risk of recurrence (e.g. MS, MOG-antibody, NMO, CIDP)
  • Chronic severe developmental/ intellectual impairment or behavioural / psychiatric disorders with concern for slowly progressive deterioration in skills (not due to widening of the gap vs peers over time), aetiology unknown, referred by a General Paediatrician – usually a once off diagnostic assessment
  • Speech regression for diagnostic assessment, e.g. assessment for epileptic encephalopathy or specific genetic cause
Category 2
(appointment within 90 calendar days)
  • Neuroinflammatory disorders – follow up after past acute presentation where not seen by Neurology, with low risk of recurrence (e.g. Guillain-Barre syndrome, ADEM, Transverse Myelitis, NMDA-R encephalitis)
  • Cerebral palsy – aetiology unknown, referred by a General Paediatrician, usually a once off diagnostic assessment
  • Rare disorders with neurological manifestations e.g. neurofibromatosis, ataxia-telangiectasia, Joubert/Dandy Walker Syndrome, Sturge-Weber syndrome (without epilepsy) – usually for a once off assessment for discussion around management of neurological manifestations or neurological/neurodevelopmental risk counselling, accepted by General Neurology
  • Severe developmental/ intellectual impairment or behavioural / psychiatric disorders without regression – aetiology unknown, referred by a General Paediatrician, usually a once off diagnostic assessment
  • Macro/microcephaly – aetiology unknown, referred by a General Paediatrician, usually a once off diagnostic assessment
  • Tuberous sclerosis (diagnosis > 3 years of age, without epilepsy)
  • Static/acquired non-progressive cranial or peripheral neuropathies (e.g. eye movement disorders) – for aetiology assessment or prognosis advice, referred by a General Paediatrician
Category 3
(appointment within 365 calendar days)
  • No category 3 criteria

Please insert the below information and minimum referral criteria into referral

1. Reason for request Indicate on the referral

  • To establish a diagnosis
  • For treatment or intervention
  • For advice and management
  • For specialist to take over management
  • Reassurance for GP/second opinion
  • For a specified test/investigation the GP can't order, or the patient can't afford or access
  • Reassurance for the patient/family
  • For other reason (e.g. rapidly accelerating disease progression)
  • Clinical judgement indicates a referral for specialist review is necessary

2. Essential referral information Referral will be returned without this

  • Details of clinical presentation (date of onset, symptoms/signs, investigations and treatment)
  • Current neurological examination

3. Additional referral information Useful for processing the referral

  • If the child is in foster care, please provide the name and regional office for the Child Safety Officer who is the responsible case manager.
  • Transfer of any neuroimaging to PACS at the hospital the patient is being referred to, with the imaging reports. If electronic imaging transfer is not available, then a CD of the neuroimaging and report should be sent to the neurologist named in the referral.

4. Request

  • Patient's Demographic Details

    • Full name (including aliases)
    • Date of birth
    • Residential and postal address
    • Telephone contact number/s – home, mobile and alternative
    • Medicare number (where eligible)
    • Name of the parent or caregiver (if appropriate)
    • Preferred language and interpreter requirements
    • Identifies as Aboriginal and/or Torres Strait Islander

    Referring Practitioner Details

    • Full name
    • Full address
    • Contact details – telephone, fax, email
    • Provider number
    • Date of referral
    • Signature

    Relevant clinical information about the condition

    • Presenting symptoms (evolution and duration)
    • Physical findings
    • Details of previous treatment (including systemic and topical medications prescribed) including the course and outcome of the treatment
    • Body mass index (BMI)
    • Details of any associated medical conditions which may affect the condition or its treatment (e.g. diabetes), noting these must be stable and controlled prior to referral
    • Current medications and dosages
    • Drug allergies
    • Alcohol, tobacco and other drugs use

    Reason for request

    • To establish a diagnosis
    • For treatment or intervention
    • For advice and management
    • For specialist to take over management
    • Reassurance for GP/second opinion
    • For a specified test/investigation the GP can't order, or the patient can't afford or access
    • Reassurance for the patient/family
    • For other reason (e.g. rapidly accelerating disease progression)
    • Clinical judgement indicates a referral for specialist review is necessary

    Clinical modifiers

    • Impact on employment
    • Impact on education
    • Impact on home
    • Impact on activities of daily living
    • Impact on ability to care for others
    • Impact on personal frailty or safety
    • Identifies as Aboriginal and/or Torres Strait Islander

    Other relevant information

    • Willingness to have surgery (where surgery is a likely intervention)
    • Choice to be treated as a public or private patient
    • Compensable status (e.g. DVA, Work Cover, Motor Vehicle Insurance, etc.)

  • If any of the following are present or suspected, please refer the patient to the emergency department (via ambulance if necessary) or follow local emergency care protocols or seek emergent medical advice if in a remote region.

    • Please note that where appropriate and where available, the referral may be streamed to an associated public allied health and/or nursing service.  Access to some specific services may include initial assessment and management by associated public allied health and/or nursing, which may either facilitate or negate the need to see the public medical specialist.

    • A change in patient circumstance (such as condition deteriorating, or becoming pregnant) may affect the urgency categorisation and should be communicated as soon as possible.

    • Please indicate in the referral if the patient is unable to access mandatory tests or investigations as they incur a cost or are unavailable locally.

Last updated: 5 February 2020

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