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Cystic fibrosis

ADULT

Minimum Referral Criteria

  • Category 1
    (appointment within 30 calendar days)
    • Newly diagnosed cystic fibrosis
    • Patients with known cystic fibrosis transitioning from a paediatric or other adult centre who have recent clinical instability and/or severe lung disease (FEV1<40%)
  • Category 2
    (appointment within 90 calendar days)
    • Suspected but undiagnosed cystic fibrosis
    • Patients with known cystic fibrosis transitioning from a paediatric or other adult centre who have recent clinical stability or moderate lung disease (FEV1>40%)
  • Category 3
    (appointment within 365 calendar days)
    • No category 3 criteria

1. Reason for request Indicate on the referral

  • To establish a diagnosis
  • For treatment or intervention not otherwise accessible to the patient
  • For advice regarding management
  • To engage in an ongoing shared care approach between primary and secondary care
  • Reassurance for GP/second opinion
  • Reassurance for the patient/family
  • For other reason (e.g. rapidly accelerating disease progression)

2. Essential referral information Referral will be returned without this

  • Medications
  • Symptoms including:
    • duration
    • severity
    • non- pulmonary CF problems
    • recent admissions
  • Previous centre of care (if transitioning patient)

3. Additional referral information Useful for processing the referral

  • Calcium, vitamin D, coagulation profile, fasting glucose, fat soluble vitamin levels and iron study results
  • Spirometry
  • Family history
  • FBC, ELFT results
  • CXR/CT and any other relevant imaging
  • Any recent sputum culture results
  • Genotype
  • Weight history/trend

4. Request

Last updated: 13 June 2023