Learning Modules:

Section 1: The Patient and Family/Carer Experience

< Back to Section 1: The Patient and Family/Carer Experience

Patient and Family/Carer Statements

• 'I felt fine, [about having the s/c infusion] I felt quite good about it because I thought rather than getting an injection – because I was getting one every night – I thought well that’s fine because it’s over 24 hours, it’s bound to help rather than taking tablets and still being sick.' (Patient)
• ‘Once he got the [s/c infusion] he stopped being sick, so it was grand. Life was easier for him and for me.’ (Carer)
• ‘So if he hadn’t had the [s/c infusion], he maybe wouldn’t have been able to stay at home.’ (Carer)
• ‘I really didn’t want it. I thought the only time they hook you up to things like this was when your time was up. My doctor talked to me for a long time about why I need it – but I still don’t like the idea of needing a pump just to get through the day.’ (Patient)
• ‘It means that we don’t leave the house much now. The nurses keep telling me that we can go out but what if something happens . . . the battery went flat the other day – what if we had been somewhere and couldn’t get it changed. It’s too much of a worry so we stay home.’ (Carer)

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