Skip links and keyboard navigation

Spleen Australia registry

If you do not have a spleen (asplenia), or have reduced spleen function (hyposplenism), you can register with Spleen Australia to access information and support to assist with managing this aspect of your health.

Registered patients will receive:

  • medical information on managing asplenia or hyposplenism
  • a credit-card sized 'spleen alert card' - to be carried at all times in case of emergencies - as well as other educational material
  • an annual newsletter providing reminders for flu vaccinations and booster vaccinations
  • access to phone support for questions, via 1800 SPLEEN (1800 775 336) information on where in Queensland they can access medical advice for overseas travel.

Spleen Australia will also ensure that the doctors of registered Queenslanders receive consistent, best-practice recommendations for the prevention and treatment of overwhelming post-splenectomy infection (OPSI).

Information for patients who lack a functioning spleen

Following a splenectomy or a diagnosis of hyposplenism, it is important that you understand how to keep healthy and take necessary steps to do so.

Your health care team may refer you to Spleen Australia as they provide support services to help you and your family manage your health. Alternatively, you can register yourself via the Spleen Australia website.

For help completing registration, contact Spleen Australia on 1800 SPLEEN (1800 775 336).

*Any information provided to the registry will be kept confidential at all times.

Registering with Spleen Australia gives:

  • you  access to important information and support
  • your doctors access to consistent, best-practice recommendations for the prevention and treatment of OPSI and other serious infections.

More information for people who lack a functioning spleen.

Important resources

More information

If you have questions or concerns about the registry visit the Spleen Australia website, call 1800 SPLEEN (1800 775 336) or email spleenregistry@alfred.org.au.

Information for clinicians

If your patient does not have a spleen (asplenia), or has reduced spleen function (hyposplenism), you can refer them to Spleen Australia via the website.

Following receipt of these details Spleen Australia will make contact with your patient via phone or mail and manage the consent process to include them in the registry. If at this stage your patient declines the services of Spleen Australia their personal details will be expunged from the registry.

Alternatively patients can register themselves on the Spleen Australia website. For help completing registration, contact Spleen Australia on 1800 SPLEEN (1800 775 336)

*Any information provided to the registry will be kept confidential at all times.

More information

Last updated: 29 May 2018