Understanding Huntington’s Disease 

Huntington's Disease (HD) is an inherited neurological condition that affects the nervous system. People with HD can have 3 types of symptoms — physical, thinking (cognitive), and emotional or personality changes.

Most people start experiencing symptoms between 30 and 50 years old. In rare cases symptoms can present before the age of 20 years old, known as Juvenile Huntington’s disease.

Find services and support

Find services and support for you, your family or the person you’re caring for.

Huntington’s Australia

We’re the peak national body for Huntington’s disease (HD) that works to improve the quality of life for individuals and families impacted by HD. We support people with HD and their families, and offer guidance, information and connection to services.

Our services

  • Advocacy and awareness campaigns
  • Training and education for everyone affected by HD
  • Support for people at every stage of their journey

Your guide to government support in Australia

Learn more about government programs and how they support all Australians with disability, and their families and carers.

  • Applying for NDIS support

    Learn how to get NDIS support and connect to services in your community.

  • Disability Gateway

    The Disability Gateway helps all people with disability, their families and carers find and access services across Australia.

  • Carer Gateway

    The Carer Gateway offers a range of free services and support for carers.

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Let us know if there’s a condition or organisation you think should be added to the gateway.

Last updated: 12 November 2025