PCEP Consumer and Community Support Resources

Consumer and Community Support Resources

ResourceDescription/Contact Details

PalAssist

PalAssist is available from 7am-7pm, 7 days a week. It is a free service for anyone who has a life-limiting illness or condition, and/or their families and carers (subject to any costs that may be imposed by a client’s telephone service provider for 1800 number calls).

PalAssist - Services: Resource list on website

Phone: 1800 772 273

7 days; 7am – 7pm

Palliative Care Australia

National Palliative Care Service Directory

Queensland Health

Queensland Health resources for care at the end of life.

Palliative Care Queensland

Palliative Care Queensland (PCQ) is a leading charity and independent peak body representing palliative care providers, consumers and their families and those with an interest in palliative care in Queensland.

Ambulance Wish Queensland

This service aims to give Queenslanders living with a life-limiting condition access to the planning, coordination, specialist transport and clinical care they need to fulfil their last wish and create forever memories.

Cancer Council Queensland

Phone: 13 11 20

Monday-Friday  9am-5pm

National Advocacy Service

Assists with accessing support services including the National Disability Insurance Scheme (NDIS), Centrelink and other government programs.

Go to website for referrals.

Brain Tumour Support Service (Qld)Phone: 13 11 20

Brain Tumour Alliance Australia (BTAA)

Provides peer support to people living with a brain tumour.

Phone: 1800 857 221

Dementia Australia

National Dementia Helpline – 1800 100 500

Dementia Support Australia

Phone: 1800 699 799
Paediatric Palliative CareFor resources - Paediatric Palliative Care

Hummingbird house

Hummingbird House provides care and support for children or young people with a life-limiting condition, who are not expected to live into adulthood as a result of their medical condition. As a child and family centred service, our care and support extends to a child/young person’s whole family, with specific programs designed to support parents/carers, siblings, grandparents, and more.

To learn more, or discuss your child’s eligibility for our service, contact our Clinical Care Team on (07) 3621 4364 or email info@hummingbirdhouse.wmq.org.au.

Queensland Children’s Hospital (QCH)

Paediatric Palliative Care Service – Phone: 1800 249 648

QCH_Bereavement-resources

Childhood Cancer Support

Childhood Cancer Support provides a range of free support services to families who have lost a child to cancer.

Phone: 07 3844 5000

Redkite

Our support is flexible, confidential and free to anyone connected to a child with cancer. You can connect with us whenever and however works best for you, and for as long as you want or need.

Phone: 1800 733 548

Heart Foundation

Support and Care

Stroke Foundation - Australia

Support line – 1800 787 653

Liver Foundation

Phone: 1300 454 837

Kidney Health Australia

Kidney Helpline – Phone: 1800 454 363

Monday – Friday 9am- 5pm

Lung Foundation Australia

Talk to a respiratory care nurse, Lung cancer support nurse or lung cancer social worker.

Phone: 1800 654 301

Motor Neurone Disease

MND Research, Advocacy & Care | MND Australia

MND Info Line -1800 777 175

MND Qld - MND Queensland - Support and specialist services for people impacted by a Motor Neurone Disease (MND) diagnosis

Multiple Sclerosis

MS Australia

Phone: 1300 010 158

Huntington’s Disease

Huntington's Disease Network of Australia

Huntingtons Queensland

Parkinson’s Disease

Parkinson's Australia

Phone: 1800 644 189

Queensland Positive People

Phone: 1800 636 241

Continence Foundation of Australia

Phone: 1800 33 00 66

Carer Services

ResourceDescription/Contact Details
Carer Gateway

Carer gateway provides a range of free services and support just for carers.  Services are delivered in-person, online and over the phone.

Phone: 1800 422 737

Monday to Friday – 8am -5pm

My Aged Care

Phone: 1800 200 422

Monday to Friday – 8am – 8pm

Saturdays – 10am - 2pm

Carers Queensland

Phone: 1300 747 636

Other

ResourceDescription/Contact Details

National Disability Insurance Scheme (NDIS)

Phone: 1800 800 110

Queensland Voluntary Assisted Dying Support Service (QVAD-Support)

The Queensland Voluntary Assisted Dying Support Service (QVAD-Support) provides advice and support to Queenslanders about voluntary assisted dying.

QVAD-Support is free for all Queenslanders and is run by care coordinators. Care coordinators are medical, nursing and allied healthcare workers.

Phone: 1800 431 371

Monday to Friday   8.30am – 4pm

Advance Care Planning

State-wide Office of Advance Care Planning.

Phone: 1300 007 227

National Advance Care Planning Support Service

Phone: 1300 208 582

Monday to Friday – 9am – 5pm

Gwandalan Palliative Care

Supporting Palliative Care For Aboriginal and Torres Strait Islander Communities

The Gwandalan Project does not address clinical palliative care content but rather, supports the provision of culturally safe and responsive palliative care by upskilling frontline staff to contextualise care for Aboriginal and Torres Strait Islander peoples, and deliver services in a way which supports a good ‘finishing up’.

Phone: 1300 362 111

Mental Health Support Services

ResourceDescription/Contact Details

1300 MH Call

Mental Health Access Line

Phone: 1300 64 22 55

24 hours

Is a confidential mental health telephone triage service for Queensland that provides the first point of contact to public mental health services.

Lifeline

Phone: 13 11 14

Beyond Blue

Phone: 1300 22 4636

Griefline

Phone: 1300 845 745

Health Professional Support Resources

ResourceDescription/Contact Details

PalAssist

PalAssist Resources - Guides and Fact sheets to support patient care

Email: info@palassist.org.au

PalliLEARN | Palliative Care QLD

Palliative education program.  See website for list of courses.

Education for Health Professionals

CPCRE - Centre for Palliative Care Research and Education

Palliative Care Education

PalliAGED

Palliative Care evidence and practice information resource for the Australian aged care sector including online learning modules.

SPaRTa - Specialist Palliative Rural Telehealth Service

SPaRTa – is a clinical support service.

PallConsult

PallConsult is a 24/7 phone-advice service for clinicians who wish to speak to a palliative care doctor or nurse for immediate advice.

Phone: 1300 PALLCR* (1300 725 527)

Services are available for clinical staff who do not have easy access to existing palliative care services in their local area.

PallConsult Resources - Support for clinicians delivering end-of-life care

National Palliative Care Standards - Palliative Care Australia

National Palliative Care Standards (5th edition – 2018).

Implementation Plan for the National Palliative Care Strategy 2018 | Australian Government Department of Health and Aged Care

Palliative Care Education

Palliative Care Curriculum for Undergraduates

Modules - PCC4U

PEPA – Program of Experience in the Palliative Approach

CareSearch Palliative care knowledge network

Palliative care evidence and tools for health professionals and information about death and dying for the whole community.

Aboriginal and Torres Strait Islander Peoples

Sad news, sorry business - Guidelines for caring for Aboriginal and Torres Strait Islander people through death and dying

CPCRE - Palliative Care for Aboriginal & Torres Strait Islander Peoples

Indigenous Program of Experience in the Palliative Approach

What is IPEPA? - PEPA

World Health Organisation

Palliative care (who.int)

Last updated: 4 December 2024