Transition from Hospital to Home Project
Description
Exploration of the experience of and services provided during transition from hospital to home for people with acquired brain injury and their families
Rationale
Transition from hospital to home can be a very challenging time for people with acquired brain injury, their families and the service providers who aim to support them in this process
The period of transition is characterised by fragmented service delivery and many people fall through the gaps
A thorough understanding of the experience of transition from the perspective of people with brain injury, their families and service providers is needed as is a thorough understanding of the current gaps in the service system
Participants
People with acquired brain injury, their families and service providers
Key Features
Understanding the transition experience as it is perceived by people with brain injury, their families and service providers
Mapping the available services in Queensland, the gaps that exist in the service system and the difficulties service providers face in supporting people with brain injury and their families during the transition from hospital to home
Identifying the factors that contribute to or predict positive and negative experiences during the transition from hospital to home
Funding
Pilot study funded by Disability Services Queensland
Successful ARC-Linkage grant submission for main study as collaborative project between University of Queensland, Griffith University, Disability Services Queensland and the Acquired Brain Injury Outreach Service
Additional Health Practitioner Research Scheme funding secured.
Research / Evaluation Strategies
Mixed methodology study using qualitative and quantitative approaches
Qualitative interviews with people with acquired brain injury and their family members to identify and describe the transition experience
Quantitative tracking of positive and negative experiences during transition and the factors that predict those experiences
Surveys of service providers and service mapping
Outputs and OutcomesFinal report completed
Ben Turner attained his Doctor of Philosophy (PhD)
Findings highlight that transition from hospital to home is a distinct and important phase of the ABI rehabilitation continuum, especially in relation to psychosocial reintegration and emotional health
There is a clear need for holistic rehabilitation throughout this transition phase
A theoretical framework was developed that highlights the needs and challenges associated with transition.
This work ultimately supported the development of the ABI TRS now funded with the support of the Motor Accident Insurance Commission (MAIC)
Publications
Ownsworth, T., Fleming, J., Haines, T., Cornwell, P., Kendall, M., Nalder, E., et al. (2011). Development of depressive symptoms during early community reintegration after traumatic brain injury. Journal of the International Neuropsychological Society, 17, 1-8.
Turner, B., Fleming, J., Ownsworth, T., & Cornwell, P. (2011). Perceptions of recovery during the early transition phase from hospital to home following acquired brain injury: a journey of discovery. Neuropsychological Rehabilitation, 21(1), 64-91.
Turner, B., Fleming, J., Ownsworth, T., & Cornwell, P. (2011). Perceived service and support needs during transition from hospital to home following acquired brain injury. Disability and Rehabilitation, 33(10), 818-829.
Cornwell, P., Fleming, J., Fisher, A., Kendall, M., Ownsworth, T., & Turner, B. (2009). Supporting the needs of young adults with acquired brain injury during transition from hospital to home: The Queensland service provider perspective. Brain Impairment, 10(3), 325-340.
Turner, B., Ownsworth, T., Cornwell, P., & Fleming, J. (2009). Re-engagement in meaningful occupations during the transition from hospital to home for individuals with acquired brain injury and their family caregivers. American Journal of Occupational Therapy, 63(5), 609-620.
Turner, B., Fleming, J., Cornwell, P., Haines, T., & Ownsworth. (2009). Profiling early outcomes during the transition from hospital to home after brain injury. Brain Injury, 23(1), 51-60.
Ownsworth, T., Little, T., Turner, B., Hawkes, A., & Shum, D. (2008). Assessing emotional status following acquired brain injury: the clinical potential of the Depression, Anxiety and Stress Scales. Brain Injury, 22(11), 858-869.
Turner, B. J., Fleming, J. M., Ownsworth, T. L., & Cornwell, P. L. (2008). The transition from hospital to home for individuals with acquired brain injury: A literature review and research recommendations. Disability and Rehabilitation, 30(16), 1153-1176.
Turner, B., Ownsworth, T., Turpin, M., Fleming, J., & Griffin, J. (2008). Self-identified goals and the ability to set realistic goals following acquired brain injury: a classification framework. Australian Occupational Therapy Journal, 55(2), 96-107.
Turner,B., Fleming,J., Cornwall, P., Worrall,L., Ownsworth, T., Haines, T., Kendall, M., & Chenoweth, L. (2007). A qualitative study of the transition from hospital to home for individuals with acquired brain injury and their family caregivers. Brain Injury, 21 (11), 1119-1130
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